As my old professor searched for answers, the disease took him over,
day by day, week by week. He backed the car out of the garage one
morning and could barely push the brakes. That was the end of his
driving.
He kept tripping, so he purchased a cane. That was the end of his
walking free. He went for his regular swim at the YMCA, but found he
could no longer undress himself. So he hired his first home care
worker-a theology student named Tony-who helped him in and out of
the pool, and in and out of his bathing suit. In the locker room,
the other swimmers pretended not to stare. They stared anyhow. That
was the end of his privacy.
In the fall of 1994, Morrie came to the hilly Brandeis campus to
teach his final college course. He could have skipped this, of
course. The university would have understood. Why suffer in front of
so many people? Stay at home. Get your affairs in order. But the
idea of quitting did not occur to Morrie. Instead, he hobbled into
the classroom, his home for more than thirty years. Because of the
cane, he took a while to reach the chair. Finally, he sat down,
dropped his glasses off his nose, and looked out at the young faces
who stared back in silence.
"My friends, I assume you are all here for the Social Psychology
class. I have been teaching this course for twenty years, and this
is the first time I can say there is a risk in taking it, because I
have a fatal illness. I may not live to finish the semester.
"If you feel this is a problem, I understand if you wish to drop the
course."
He smiled. And that was the end of his secret. ALS is like a lit
candle: it melts your nerves and leaves your body a pile of wax.
Often, it begins with the legs and works its way up. You lose
control of your thigh muscles, so that you cannot support yourself
standing. You lose control of your trunk muscles, so that you cannot
sit up straight. By the end, if you are still alive, you are
breathing through a tube in a hole in your throat, while your soul,
perfectly awake, is imprisoned inside a limp husk, perhaps able to
blink, or cluck a tongue, like something from a science fiction
movie, the man frozen inside his own flesh. This takes no more than
five years from the day youcontract the disease. Morrie's doctors
guessed he had two years left.
Morrie knew it was less. But my old professor had made a profound
decision, one he began to construct the day he came out of the
doctor's office with a sword hanging over his head. Do I wither up
and disappear, or do I make the best of my time left? he had asked
himself. He would not wither. He would not be ashamed of dying.
Instead, he would make death his final project,the center point of
his days. Since everyone wasgoing to die, he could be of great
value, right? Hecould be research. A human textbook. Study mein my
slow and patient demise. Watch what happens to me. Learn with me.
Morrie would walk that final bridge between life and death, and
narrate the trip.
The fall semester passed quickly. The pills increased. The rapy
became a regular routine.
Nurses came to his house to work with Morrie's withering legs, to
keep the muscles active, bending them back and forth as if pumping
water from a well. Massage specialists came by once a week to try to
soothe the constant, heavy stiffness he felt. He met with meditation
teachers, and closed his eyes and narrowed his thoughts until his
world shrunk down to a single breath, in and out, in and out.
One day, using his cane, he stepped onto the curb and fell over into
the street. The cane was exchanged for a walker. As his body
weakened, the back and forth to the bathroom became too exhausting,
so Morrie began to urinate into a large beaker. He had to support
himself as he did this, meaning someone had to hold the beaker while
Morrie filled it.
Most of us would be embarrassed by all this, especially at Morrie's
age. But Morrie was not like most of us. When some of his close
colleagues would visit, he would say to them, "Listen, I have to
pee. Would you mind helping? Are you okay with that?"
Often, to their own surprise, they were. In fact, he entertained a
growing stream of visitors. He had discussion groups about dying,
what it really meant, how societies had always been afraid of it
without necessarily understanding it. He told his friends that if
they really wanted to help him, they would treat him not with
sympathy but with visits, phone calls, a sharing of their problems-
the way they had always shared their problems, because Morrie had
always been a wonderful listener.
For all that was happening to him, his voice was strong and
inviting, and his mind was vibrating with a million thoughts. He was
intent on provingthat the word "dying" was not synonymous
with "useless."